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Guidance for those at risk of Genetic ALS and FTD 

Guidance for clinical management of pathogenic variant carriers at elevated genetic risk for ALS/FTD 

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A signature achievement since our founding was helping to inspire, sponsor, participate, and assist in the drafting of the 2024 Review article published in the Journal of Neurology, Neurosurgery and Psychiatry. The project, led by Drs Michael Benatar and Terry Heiman-Patterson, established for the first time that being monitored while at risk for genetic ALS and FTD  is sound and recommended if desired. Other recommendations related to exercise, diet, and more are contained in the report. ETL paid for the open access fee, so all can read this groundbreaking development: https://doi.org/10.1136/jnnp-2024-334339 .

A Guidance Education Document 
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