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We are in this Together

Support for people and families affected by genetic risk for ALS and FTD

Genetic ALS and FTD can bring uncertainty, anxiety, and difficult questions. We create spaces where people at genetic risk, family members, and others affected can connect with people who understand. No one should have to navigate this alone. Learn more about our support efforts in our 2023 presentation.

Reach Out - We Care

Peer Support Hour

Informal, peer-led conversations where people can connect, share experiences, and support one another in a judgment-free space.

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Virtual Meeting

Community Meetings

We meet virtually to discuss ETL’s work, share news relevant to our community, and connect with others who want to get involved.

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Other Support Options

Explore additional sources of support for people and families affected by genetic ALS and FTD.

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2026 North American Community Summit

Join us in Sacramento, California, for the 2026 Genetic ALS & FTD Community Summit!

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