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We are In This Together

Community Support for the genetic ALS & FTD Community

Many of us have seen family members have  nowhere to turn for someone who understands what being in an impacted family is like. We strive to ensure that there is always a place to turn for those at risk, loved ones, and all impacted by genetic ALS & FTD. Our efforts have a positive impact - see our 2023 presentation on these efforts. 

2023 Support Presentation

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Reach Out , We Care

Peer Support Hour

 Informal, peer led discussions  allowing attendees to meet others impacted and share in a judgement free space.  

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Virtual Meeting

Community Meetings

We meet virtually regularly to review the work ahead of us and news of interest to our community. A great way to connect with others who want to be involved!

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Web Forum

We have a simple forum on this website to discuss information relevant to genetic ALS & FTD. 

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Other Support Options

Learn of some  other ways to seek support related to genetic ALS & FTD. 

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Event Schedule.jpg

2026 North American Community Summit

We are coming back together in person for our 2026 Genetic ALS & FTD Community Summit in Sacramento California! 

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Pacific Region Community Summit 2025

The first Genetic MND / FTD Community summit for those in the Pacific region is occuring in September 2025!

Learn More
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