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Clear, Accessible Information About Genetic ALS & FTD

Resources for our community

Research and information about genetic ALS and FTD can be complex and difficult to navigate. We bring together plain-language guides, expert webinars, personal stories, and other resources to help people and families find information relevant to them. Explore our resources by topic or gene.

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Educational Webinars

DNA

Genetic Information Guides

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Family Planning Resources

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Search For a Self Cure Series

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Genetic Testing Information

Online counselling

Genetic Counseling Education

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C9orf72 Information and Resources

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