Deciding whether to pursue genetic testing is personal. Testing can have medical, emotional, family, privacy, and insurance implications. A genetic counselor can explain the available testing options and help you consider whether, when, and how you may want to proceed.

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ETL encourages people considering predictive genetic testing to consult a qualified genetics professional. Some testing programs include genetic counseling, while others do not, so it is important to ask what support is available and consider forgoing any testing until you receive qualified genetic counseling. End the Legacy is proud to offer free Genetic Counseling Education to learn more about this process.​

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Watch our 2024 presentation about genetic testing in ALS: