An Introduction to New Clinical Guidance for Those At Risk for Genetic ALS and FTD
Wed, Feb 12
|Zoom Webinar
Hear from the lead authors of a recently published report on clinical guidance for those at risk of genetic ALS and FTD.


Time & Location
Feb 12, 2025, 2:00 PM – 3:00 PM PST
Zoom Webinar
Guests
About the event
For as long as ALS and FTD have been known, families with autosomal dominant inheritance have been observed. Despite progress in care and treatment, no guidance for at-risk relatives in inherited ALS and FTD families had been formalized. To address this, a workshop was held in Philadelphia in 2023 hosted by the ALS Hope Foundation and the affiliated genetic ALS and FTD organization End the Legacy. The output of that assembly of researchers, clinicians, industry and community representatives was the paper detailing clinical guidance for those at risk of genetic ALS and FTD published in late 2024.
The first public introduction to this work will be this webinar hosted by End the Legacy. Dr. Terry Heiman-Patterson of Temple University and Dr. Michael Benatar of the University of Miami, the project's lead researchers, will present a brief overview, and there will be time for a short Q&A. Please consider telling impacted…
Tickets
General Admission
Link for zoom: https://zoom.us/j/97754106415?pwd=rDjrlAMQaPhAJXMmuX0kkUHpxgbaKp.1
$0.00
Total
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