Tue, Jan 30
|Webinar
Genetic ALS / FTD Research Education Series : Focus on C9orf72
Over 100,000 healthy people in the United States have C9orf72 repeat expansions, and a few thousand more have an ALS or FTD diagnosis - what research is available for them to participate in?
Time & Location
Jan 30, 2024, 5:00 PM – 6:30 PM PST
Webinar
Guests
About the event
Around 140,000 or more healthy people in the United States have C9orf72 repeat expansions, a few thousand more with a current ALS or FTD diagnosis - what research is available for them to participate in? It can be hard to understand what research participation is available. It can be even harder to picture what participating in research is like! Hear from experts about what research is available and from everyday people with the mutation about what participating looks like for them.
Family Learning Opportunity
End the Legacy thinks Inherited Diseases are best understood in concert with other family members. To facilitate this, we are offering a chance for a shared meal for families learning together. Apply by emailing info@endthelegacy.org with why you are interested and who you will be viewing with.
Tickets
Ticket
Hi there, You are invited to a Zoom webinar. When: Jan 30, 2024 05:00 PM Pacific Time (US and Canada) Topic: Genetic Research Education Series: Focus on C9orf72 Please click the link below to join the webinar: https://zoom.us/j/94149192382 Or One tap mobile : +16694449171,,94149192382# US +16699006833,,94149192382# US (San Jose) Or Telephone: Dial(for higher quality, dial a number based on your current location): +1 669 444 9171 US +1 669 900 6833 US (San Jose) +1 346 2
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