Tue, Jan 23
|Webinar
Genetic ALS / FTD Research Education Series : Focus on SOD1
Around 10,000 healthy people in the United States have SOD1 pathogenic variants, a few hundred more with an ALS diagnosis - what research is available for them to participate in?
Time & Location
Jan 23, 2024, 5:00 PM – 6:30 PM PST
Webinar
Guests
About the event
Around 10,000 healthy people in the United States have SOD1 pathogenic variants, a few hundred more with an ALS diagnosis - what research is available for them to participate in? It can be hard to understand what research participation is available. It can be even harder to picture what participating in research is like! Hear from experts about what research is available, and from everyday people with the mutation about what participating looks like for them.
Family Learning Oppurtunity
End the Legacy thinks Inherited Diseases are best understood in concert with other family members. To facilitate this, we are offering a chance for a shared meal for families learning together. Apply by emailing info@endthelegacy.org with why you are interested and who you will be veiwing with.
Tickets
Ticket
Hi there, You are invited to a Zoom webinar. When: Jan 23, 2024 05:00 PM Pacific Time (US and Canada) Topic: Genetic Research Education Series : Focus on SOD1 Please click the link below to join the webinar: https://zoom.us/j/98079182704 Or One tap mobile : +16694449171,,98079182704# US +16699006833,,98079182704# US (San Jose) Or Telephone: Dial(for higher quality, dial a number based on your current location): +1 669 444 9171 US +1 669 900 6833 US (San Jose) +1 253 205
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