Answering Questions for Ourselves
We so appreciate the many well trained experts who research our community. But they don't always want to answer questions we want answered - so we try ourselves!
End the Legacy Posters
Poster Presented at the 2024 ALS MND Symposium
We presented a poster at the 2024 ISFTD meeting in Amsterdam on the possible risks of using informants in asymptomatic people.
Poster from 2023 ALS MND Symposium.
Further Results from Survey
A video explainer of a poster presented at the 2022 ALS MND Symposium on original C9orf72 estimates by Jean Swidler
Results of a survey conducted of our community of the desire for presymptomatic treatment, presented at the 2022 Allied Professional Forum.
End the Legacy Affliated Posters
Wanda Smith Presented this poster on GRN Communitty Activation at the 2024 ISFTD Meeting
Wanda Smith Presented this poster on GRN Communitty Activation at the 2024 ISFTD Meeting